Brooke from New Zealand is a newer face to Crohn’s Disease and has had it for 5 months now. Some of the things that challenges her on a daily basis is fatigue, achy joints, cramps, ulcers, hair loss and the list goes on. Since she is early on in her journey with Crohn’s, she is scared that it will progress and become worse. This is … Continue reading Meet Brooke
Mathelde has been struggling with Crohn’s for over 30 years now. She has had so many surgeries that she actually lost count of them and lives with an ostomy bag. Even with all of the surgeries and ostomy, she still hasn’t experienced remission from Crohn’s. Her drugs of choice right now is Budesonide, Omeprazole, and Linzess. Even though Mathelde has had Crohn’s for basically as … Continue reading Meet Mathelde
August was my peak for my training. We are now in the final month of training and I have a few more ‘longer runs’ including a couple 20 milers this month and then it will be taper time for the big day, October 7 in Chicago. One of the big challenges this summer has been the humidity. I generally get my runs knocked out first … Continue reading August Wrap up
Richelle is a busy mom/step-mom to 2 growing teenagers. Speaking from experience, Crohn’s and teenagers can lead to a busy life. Richelle has been battling Crohn’s for 4 years now and has had 2 surgeries thus far. We hope that is all she will have to go through. Richelle’s drugs of choice are Remicade, immodium, Lomotil, and a probiotic. With that drug combination, she has … Continue reading Meet Richelle
Natasha is a 3 year veteran of Crohn’s from Portland, OR. She has been fortunate of staying away from surgery, but that fear is real in her life. Remicade is her drug of choice right now and has been in remission for 6 months now. Even working in healthcare and going to school to be a nurse, it is difficult. Having to explain to others … Continue reading Meet Natasha
Kay is a busy mom (3), grandma (3), and great-grandma (4) from Texas has been a trooper dealing with Crohn’s for 48-50 years! In that timeframe, she has had 3 resections (section of her intestine removed) as a result of her Crohn’s. Kay has been on quite a few different medications, but her go-to drug right now is Entyvio. CBD oil and it has really cut … Continue reading Meet Kay
Jenelle is our first International Crohnnie profile and is from Nova Scotia. She has battled Crohn’s for 25 years now and been through 12 surgeries! In that 25 year timespan, she has been in remission for only 6 of them. Dealing with the pain is a daily challenge for Jenelle and is currently on pain meds to help her through the day. Jenelle shares the … Continue reading Meet Jenelle
I woke up to a message from a friend from high school telling me that his 15 year old daughter has been battling Crohn’s for the last 5 years and Remicade has been good for her until recently. I think back on my days dealing with Crohn’s at the age of 15 and trying to deal with sports and the flares of Crohn’s. It can … Continue reading July Roundup
Sterlyng is a busy mom of one from South Dakota and has been battling Crohn’s for about 2 years. She has had one surgery and it was a laparoscopic resection. (I believe this is the first time I have heard this.) This would eliminate the standard 8-10 week recovery time for a standard procedure. Steerlyng hasn’t been in remission, is currently her drug of choice … Continue reading Meet Sterlyng
Erika has been a Crohn’s fighter for 11 years. In that timeframe, she has gone through 2 surgeries. Even after a few surgeries, she hasn’t really been in remission and battles Crohn’s every day. Currently, her go-to drugs are Stelara and Immuran. She has tried some of the biologics like Remicade, Humira and Cimzia, but she was unresponsive on those drugs. She like many others, … Continue reading Meet Erika
Running and Chasing Medals with Crohn's Disease 